Ehlers Danlos Syndrom (and related)

Ehlers Danlos Syndrom is a genetic collegen deficiency. EDS, as it is commonly referred to as, isn’t too terribly difficult to understand but its very rarely diagnosed since there is no definitive test for it yet.
The Mayo Health System has a wonderful site that explains a considerable amount about EDS. This is their definition of it.
“Ehlers-Danlos syndrome is a group of inherited disorders that affect your connective tissues — primarily your skin, joints and blood vessel walls. Connective tissue is a complex mixture of proteins and other substances that provides strength and elasticity to the underlying structures in your body.

People who have Ehlers-Danlos syndrome usually have overly flexible joints and stretchy, fragile skin. This can become a problem if you have a wound that requires stitches, because the skin often isn’t strong enough to hold them.

A more severe form of the disorder, called vascular Ehlers-Danlos syndrome, can cause the walls of your blood vessels, intestines or uterus to rupture. If you have vascular Ehlers-Danlos syndrome, you may want to talk to a genetic counselor before starting a family.”
-Mayo Health System ( )

Ehlers Danlos Syndrom is genetic. I got it from my mom, who got it from her mom, who got it from her mom. I have five other family members who also have it. Though my line came on the maternal side, it can be passed down no matter the gender.
Also I’m so happy and relieved to at least be able to say I do not have the Vascular type of EDS, though I still need to have an echo cardiogram every two to three years, I don’t worry about my heart failing on me, as some others do.

This is my little bit on Ehlers Danlos Syndrom and I will probably be explaining more about it as well as more about other conditions that come along with EDS that I have.


Loving Zebra hugs to you all.


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